About
Clinical Data Harmonization
The emergence and prevalence of electronic health records (EHRs) fundamentally transformed th opportunities for efficient translational research at scale. However, the syntactic and semantic content of EHRs remain sufficiently inconsistent between and among implementations that additional efforts for normalization are necessary across a Federated network such as the CTSA. This project is about enabling comparable and consistent representation of clinical data across the CTSA network to support federated query and facilitate large-scale translational research collaboration.
Project Description
Many excellent common data models exist in the translational research space. While such diversity may seem a feature, it actually complicates the efforts of CTSA hubs to support all of them. Furthermore, the widely shared goal of CTSA’s functioning as an integrated network of investigators and data is challenged by the heterogeneity across data repositories.
The Accelerating Clinical Trials (ACT) is an effort to achieve an effective clinical data network across the CTSA community. CD2H is working closely with ACT to simplify the task of creating a shared repository, and to interoperate with collegial data networks such as OHDSI, PCORNet, and TriNetX.
Meet the Team
Leads
Project scientific leadership:
| Lead(s) (github handle) | Site |
|---|---|
| Chris Chute (@cgchute) | JHU |
Contact person
| Point person (github handle) | Site | Program Director |
|---|---|---|
| Tricia Francis (@tricfran) | JHU | Chris Chute (@cgchute) |
Core Team Members
| Johns Hopkins University | Univeristy of North Carolina | Oregon Health & Science University | Mayo Clinic |
|---|---|---|---|
| Christopher Chute | Emily Pfaff | Shahim Essaid | Guoqian Jiang |
| Tricia Francis | |||
| Harold Solbig | |||
| Richard Zhu | |||
| Davera Gabriel |
Full Team Members
Team members are listed below and here.
Contributor(s)
| Name | GitHub Handle | Site |
|---|---|---|
| Wendy Blumenthal | github.com | CDC/NPCR |
| Matthew Brush | mbrush | OHSU |
| Catherine Craven | github.com | Icahn |
| Peter Elkin | github.com | UBuffalo |
| Tricia Francis | tricfran | JHU |
| Davera Gabriel | github.com | JHU |
| Ken Gersing | KenGersing | NCATS |
| Gideon Gordon | github.com | CDER |
| Aaron Harris | github.com | CDC/DVH |
| Raju Hemadri | rajuhemadri | NCATS |
| Guoqian Jiang | gqjiang | Mayo |
| Boyd Knosp | boydknosp | Iowa |
| Bernie LaSalle | github.com | UUtahHealth |
| Diego Mazzotti | mazzottidr | UPenn |
| Julie McMurry | jmcmurry | OSU |
| Michele Morris | github.com | UPitt |
| Sandeep Naredla | github.com | NCATS |
| Emily Pfaff | empfff | UNC |
| Srini Rao | srinirao55 | NCATS |
| Mitra Rocca | github.com | CDER |
| Andrey Rzhetsky | arzhetsky | UChicago |
| Sai Manjula Simhadri | saimanjula | NCATS |
| Harold Solbrig | hsolbrig | JHU |
| Arunkumar Srinivasan | github.com | CDC/DDID/NCHHSTP/OD |
| Bradley Taylor | btaylormcw | MCW |
| Philip Trevvett | ptrevvett | Harvard |
| Abby Viall | aviall | CDC/DDID/NCHHSTP/OD |
| Sam Volchenboum | volcs0 | UChicago |
| Adam Wilcox | abwilcox | UW |
| DuWayne Willett | duwaynewillett | UTSouthwestern |
| Richard Zhu | richard1933 | JHU |
Mailing list only
| Name | GitHub Handle | Site |
|---|---|---|
| Chris Amos | github.com | Baylor |
| Nick Anderson | flipcorp | UCDavisHealth |
| Michael Bales | michaelbales1 | Cornell |
| Matt Baumann | mattbaumann1 | Northwestern |
| Tom Campion | github.com | Cornell |
| Jack Chang | ab2cw | URMC |
| Ammar Chaudhry | informatics | COH |
| Connor Cook | cgcook | OHSU |
| Allen Dearry | dearry | CancerGov |
| David Dorr | davedorr9 | OHSU |
| Shahim Essaid | ShahimEssaid | OHSU |
| Joseph Finkelstein | finkeljOMOP | Icahn |
| John Franz | github.com | Icahn |
| Brian Furner | bfurner | UChicago |
| JP Gourdine | jpgourdine | OHSU |
| Randy Grout | randallgrout | Indiana |
| Kate Haas LaVigne | KateHaasLaVigne | UChicago |
| Melissa Haendel | mellybelly | OHSU |
| Kristi Holmes | kristiholmes | Northwestern |
| Diane Keogh | gibhub.com | Harvard |
| Ashok Krishnamurthy | ashokohio | UNC |
| Albert Lai | laialbert | WashU |
| Yupu Liang | github.com | Rockefeller |
| Lisa O’Keefe | LisaOKeefe1 | Northwestern |
| Laura Paglione | lpaglione | Spherical |
| Nitin Parikh | github.com | UCDavisHealth |
| Steve Patterson | github.com. | iTHRIV |
| Philip Payne | prpayne5 | WashU |
| Rose Relevo | RoseRelevo | OHSU |
| Peter Robinson | pnrobinson | JAX |
| Eugene Sadhu | eugsadhu | UIC |
| Thomas Schaffter | tschaffter | Sage |
| Lisa Schick | lmschick | NCATS |
| Rob Schuff | schuffr | OHSU |
| Pamela Shaw | bioscibrarian | Northwestern |
| Eric Sid | ericsid | NCATS |
| Tony Solomonides | github.com | UChicago |
| Julian Solway | jsolway | UChicago |
| Juan Suarez | github.com | NYU |
| Umit Topaloglu | umtopaloglu | Wakehealth |
| Ali Torkamani | atorkama | Scripps |
| Alfred Vitale | github.com | URMC |
| Nicole Weiskopf | weiskopf | OHSU |
| Tamara Winden | tjwinden | KansasU |
| Elizabeth Zak | ezak101 | Iowa |
| Xinzhi Zhang | NCATS2019 | NCATS |